Thursday, March 26, 2009

MRI REPORT


10 Cançadores


I am not sure if the news is good or bad or just nonexistent. Last night was very bad. I had a strong aura just 2 hours after taking my medicines. Cousin Emily drove me to the neurosurgeon. The doctor did two things: Ordered an MRI and called the neurologist to get me in before April 14. I am now scheduled for April 2. The doctor also put me on driving restrictions. He told me to limit drastically if not totally the amount of driving that I do until I get these auras under control. I can drive to the grocery store and back is pretty much it for a while. I will talk to my neurologist about how long I will be under that restriction.

  
We left his office and drove to the Imaging Center and they did an MRI with out and with contrast. Although basically everything was the same as all other MRIs that I have had, there was one difference: the technician asked me if I was going to see the neurosurgeon again. The technician has never asked that so I wondered why he did this time. However, to be clear, the technician never expressed and concern in what he said, in his tone of voice, or in how he treated me. He even joked with me about me being a "MRI Pro" and that I must have earned a degree in "How To Be A Good MRI Patient" by now.

  
Unfortunately, the answer to his question was "No". My neurosurgeon did not what to see me back. He instructed me to get a CD of the MRI to take with me to my neurologist. The Imaging Center people would fax my neurologist their written report. So, I do not have any official information to give to you today.


As is my custom, I did get a CD of my scan for myself. I have carefully looked at those 100+ images from this MRI and from previous ones. Although I am not an expert, nothing jumped out at me as being different. I did notice an area about 2cm x 1cm that was darker than the previous times... at the site of the original tumor. However, that could be caused by a slightly deeper "cut" this time, exposing some of the choroid plexus (that butterfly looking structure in the middle of the brain as seen from above). I am not overly concerned and will as patiently as I can wait to talk with my neurologist. I think if it was a recurrence, it would have been white.

  
I hope this does not overly concern you. I appreciate all of your thoughts, messages, and prayers. But right now I really think my auras are a sign of something off with my medicines that the cancer being back.





Give this some time to buffer. It is well worth it.

UPDATE ON MY HEALTH


09 Paisagem perto de CaixambĂș, Minas Gerais


Last Saturday night, I started having my pre-seizure auras. I double up my medication and went to bed thinking I would be fine in the morning. I was fine until mid afternoon when the aura came back. It is hard for me to describe what an aura feels like. However, I have had enough seizures to know what I feel like before one hits me. I have still not had a seizure and the aura has come and gone.

 

Monday, I already had an appointment with my GP. I was right in thinking that he would refer me to my neurologist. However, I am not sure where the communication broke down but the neurologist's nurse did not understand how important it was for the neurologist to see me ASAP so I am scheduled to see him April 14. I knew that would not do. I was thinking about just going over to his office and saying: "See me now or risk seeing me later in the ER after I have had a seizure." I realized that one of the things he would do is check my medicine blood leave. Since I had doubled up, that would probably return in the therapeutic range. The other thing he would do is call my neurosurgeon to see if he thought an MRI was needed. So, rather than taking that extra step in seeing my neurologist, I called my neurosurgeon who wants to see me today (Thursday) and possibly do an MRI.

 

All my support system is lined up: My cousin will drive me the 45 miles to St Thomas in Nashville; my wonderful neighbors are looking in on me every day now; and my family has all been notified… although right now there is precious little my family can do for me or that I want them to do.

 

This has brought to the forefront the issue of where I am living. I have decided, regardless of what is happening now, that I will be living in Paducah be next Christmas.

 

Next update will be later today when I get back from Nashville.


Friday, March 13, 2009

BROKE


8 Pescaria


It has been a long time. I am working on the Hardison Book update. The Hardison family is the family of my maternal grandmother. My father wrote the basic book. I am just scanning it and updating it. I have no plans of really publishing it in hardback form. If I do sell it, it will be as an eBook. But that is a long time in the future.

 

Right now, I am broke. I have absolutely no money until April 8. I have paid all my bills (I hope) and bought all the food that I need for over one month. However, there is very little left to pay off my depts, entertainment, travelling… I do not even have money for my medicines. It really is bad.

 

Oh, well. I will manage. I have managed so far.