Last Saturday night, I started having my pre-seizure auras. I double up my medication and went to bed thinking I would be fine in the morning. I was fine until mid afternoon when the aura came back. It is hard for me to describe what an aura feels like. However, I have had enough seizures to know what I feel like before one hits me. I have still not had a seizure and the aura has come and gone.
Monday, I already had an appointment with my GP. I was right in thinking that he would refer me to my neurologist. However, I am not sure where the communication broke down but the neurologist's nurse did not understand how important it was for the neurologist to see me ASAP so I am scheduled to see him April 14. I knew that would not do. I was thinking about just going over to his office and saying: "See me now or risk seeing me later in the ER after I have had a seizure." I realized that one of the things he would do is check my medicine blood leave. Since I had doubled up, that would probably return in the therapeutic range. The other thing he would do is call my neurosurgeon to see if he thought an MRI was needed. So, rather than taking that extra step in seeing my neurologist, I called my neurosurgeon who wants to see me today (Thursday) and possibly do an MRI.
All my support system is lined up: My cousin will drive me the 45 miles to St Thomas in Nashville; my wonderful neighbors are looking in on me every day now; and my family has all been notified… although right now there is precious little my family can do for me or that I want them to do.
This has brought to the forefront the issue of where I am living. I have decided, regardless of what is happening now, that I will be living in Paducah be next Christmas.
Next update will be later today when I get back from Nashville.
I am praying for you! I have been reading your blogs for a while my daughter's boy friend was diagnosed with a gliioma the size of a females fist in august. Has had 4 surgeries 3 of them due to staph. I pray for good news for u today!
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